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Alpha One Foundation
Alpha One Foundation / Location : 2937 SW 27th Avenue, Suite 302, Miami, Florida 33133 / Tel : (305) 567-9888, 877-2 CURE A1 (877 228-7321), Fax : (305) 567-1317 / Contents : Educational material, Research information, News, Calendar of meetings & events, Program for patient (General information about Alpha-1)  
American Porphyria Foundation
APF / Located in P.O. Box 22712 Houston, Texas 77227 / Tel : 713-266-9617 / Contents : Introduction, Membership Information, News, Resources  
Canadian Cystic Fibrosis Foundation
CCFF / Located in 2221 Yonge Street, Suite 601, Toronto, Ontario, M4S 2B4 / TEL : (416) 485-9149, FAX : (416) 485-0960 / Contents : Information for patients / Language : English & French / Temporarily Missed Link : 23/04/2002  
Cystic Fibrosis Foundation
CF Foundation / Location : 6931 Arlington Road, Bethesda, Maryland 20814 / Tel : (301) 951-4422, (800) FIGHT CF (344-4823), Fax : (301) 951-6378 / Contents : Educational material, Program for patient (Information about Cystic Fibrosis), Calendar of meetings & events, News, Commitment (national newsletter) 
FRAXA Research Foundation
FRF / Located in 45 Pleasant St., Newburyport, MA 01950 / Tel: (978) 462-1866, Fax: (978) 463- 9985 / Contents : Calendar of Events and News, Research, Information for Patients 
FRAXA Research Foundation, Fragile X Syndrome
Located in 45 Pleasant St., Newburyport, MA 01950 / Tel : (978) 462-1866, Fax : (978) 463-9985 
Hereditary Disease Foundation
HDF / Located in 1303 Pico Blvd. Santa Monica, CA 90405-1553 USA / Tel: (310) 450-9913, Fax: (310) 450-9532 / Annual Meeting for Huntington's Disease Researchers : August 9-11, 2002 - Cambridge, Massachusetts / Contents : Educational Materials, News 
Hereditary Nephritis Foundation
HNF / Located in 1390 West 6690 South, #202H Murray, UT 84123-6914 / Tel and Fax : 801-262- 5901 / Contents : Educational material, Newsletter, Useful links 
International Rett Syndrome Foundation
The world''''s leading private funder of Rett research / RSRF Office 4600 Devitt Drive Cincinnati, OH 45246 Tel: (513) 874-3020 Fax: (513) 874-2520 / Menu: Parent Resources, RSRF-Funded Research, Researchers Clinical Trials/Studies, Mutation Databases, Events, Resources / Rett Syndrome (RTT) is a debilitating neurological disorder diagnosed almost exclusively in females - caused by mutations in the gene MECP2, located on the X chromosome 
Prader-Willi California Foundation
PWCF / Located 360 Mobil Ave. Suite 205-C_ Camarillo, CA 93010-6325 / TEL : (805) 389-3484, FAX : (805) 383-0889 / Prader-Willi California Foundation Annual Meeting & Program. October 2002 Fairfield, California / Contents : General information PWCF, Educational material, Information for patients  
Scleroderma Foundation-Southern California Chapter
SF Southern California Chapter/ Location : Coast plaza doctors hospital, 13132 Studebaker Rd. Ste. 11, Norwalk, CA 90650 / Tel : 310-377-4723, 310-677-0477, 818-766-5602, Fax : 310-377-4923, 818-508-4366 / Contents : Program for patient (General information about Scleroderma), Calendar of meetings & events  
United Leukodystrophy Foundation
ULF / Located in 2304 Highland Drive Sycamore, Illinois USA 60178 / Tel: (800) 728-5483, Fax: (815) 895-2432  
United Mitochondrial Disease Foundation(UMDF)
UMDF / Located in 8085 Saltsburg Road, Suite 201 Pittsburgh, PA 15239 / Tel: (412) 793-8077, FAX: (412) 793-6477 / Contents : Educational Program, Program for patients, Calendar of Events 
   
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